May 15, 2008

Nothing is ever easy...

There are times where I find myself so frustrated with things...not Gage...just things. Today is definitely one of those times.
I've been making phone calls all morning to try and find out information on wheelchair ramps as we need one for the house...aside from one place that is out of funding for the year I can't find any place that either helps fund the ramp or covers it altogether. It's ridiculous.
I am just so irritated with the world right now. Not only do Kris and I have the daily "battles" with Gage...seizures, paying for medicine, Dr.'s appts. etc....but we also have the joy of trying to figure out how to pay for things like wheelchair ramps and seats for him inside the house.
How is it that there is only one place that helps with that???
Why is it so easy to get on welfare and food stamps but so damn hard to find help for disabled children?? Where are the priorities??
Families on welfare for the most part have a choice of whether to work or not work and they have the luxury of changing their situation but families with special needs children don't have that choice....we cannot wake up one day and decide that we're going to change our child's situation.

Do you guys realize that I have to sit at home most of the time with Gage because we cannot afford to pay for a wheelchair that I can lift into the car?? The one we have now is great for the school bus but I cannot lift it.
I've accepted that though.
But to find out that it's going to cost thousands of dollars for wheelchair ramp just so my child can get out of the front door??? I WILL NOT ACCEPT THAT.
I CAN'T accept that.

But I don't know what I'm going to do.
I am so beyond frustrated and sad over this.

Why does it all have to be so hard???

5 comments:

Anonymous said...

Shannon,

You might want to check with the Catholic Charities that's in the area of your new home.

The local Lake County branch located here in Waukegan is on Lewis Avenue just South of Belvidere Rd. You should give them a call and see if they have a location near your new home.

There number is 847-782-4000. Try calling them to see if they can help your or know who can help with Gage's Ramp and other Necesities you need.

I hope this helps you out.
Love,
Holly

Anonymous said...

I know chickie,it Sucks! There must be something. I will let you know if I find anything out.

Love,
Christy

Kelly said...

I completely understand. Luckily, our HMO covers most things, and my daughter qualified for medi-cal at the age of 3. Because I have those resources, I don't look into many others that are out there - check into your local Elks, or United Cerebral Palsy (even if Gage doesn't have CP) -they usually have resources to help you out!

I totally agree - its easier to get on welfare than it is to get new AFOs for my daughter! So not fair!

discountramps said...

Shannon,

I would like to help you find a solution to your wheelchair ramp needs. I encourage you to check out our web site and see what we have to offer. You can see the wheelchair ramps at:

http://www.discountramps.com/portable_ramps.htm

I'm sure you'll see we have plenty of wheelchair ramps that should handle the loading of your chair. If you would like to discuss the products and see if we may have others that would work please give me a call via the contact information below.

Thanks and I look forward to speaking with you!

Mike N.
DiscountRamps.com
888-651-3431 x 7905

Anonymous said...

Hey there (RED here)

How frustrating. I can't even begin to imagine. As if you don't have enough on your plate to begin with. It seems as if the services are so disjointed in how they provide....

RED